Hematopoietic Stem Cell Transplant is a method by which a person’s immune system is ablated (destroyed, vaporized) and then rebuilt using their own blood (hematopoietic) stem cells.
It’s not a magic bullet. Only about 90-95% of RRMS (Relapsing-Remitting Multiple Sclerosis) patients, and 70-75% of SPMS (Secondary Progressive Multiple Sclerosis) patients respond to treatment. And the mortality rate, which is often overstated, is only about 0.3%.
So the statistics are certainly in my favor.
I have been through my share of DMDs (Disease Modifying Drugs). And while I’d say that some were better than others, it seems clear that I have been progressing in my disability.
My latest MRI report stated “no new or active lesions”, which the doctors say is good. I just know that I am still deteriorating. There are some theories that say our MRIs are not telling the whole story. Others say the MRIs we have are not high enough resolution to tell the whole story. I have been here before. Where the progression of my disease is outstripping medical theory.
Mainly, where I am now, is that I really don’t have much hope for recovery even with the treatment. But I know I need to do everything I can to keep from slipping more. Even if it’s not for my sake. my job right now is taking care of my 5-year-old daughter (6 in October). A job I adore. If my disability slips any further, I risk not being able to take care of myself, and much less her.
THAT’S why this NEEDS to happen